Small Grant RecipientsUpdated as of: October 18, 2013
Susan G. Komen Nebraska awards small grants (up to $5,000) throughout the year that are intended to support breast health education, pilot programs, conference, and travel grants to tax-exempt organizations in Komen Nebraska’s 91-county area (all counties except for Thurston and Dakota counties). The following programs are 2013-2014 Small Grant Recipients.
A Time to Heal
The purpose of this grant is to address what survivors indicate as one of their major post-treatment problems: cognitive impairment as a result of cancer treatment, sometimes called “chemobrain” or “brain fog.” For many breast cancer survivors, this is a frustrating and frightening problem that has, to date, not been well addressed. According to the Mayo clinic, some symptoms of “brain fog” include being unusually disorganized; confusion; difficulty with concentration, multitasking, finding the right word, and learning new skills; short term memory problems; and taking longer than usual to complete routine tasks. These issues cause additional family and job stress for survivors. This grant will help fund a training for professionals to provide an evidence-based 8 week class in remediating cancer related brain fog. Providers from at least 4 sites across the state of NE will be invited to attend an intense 3 day training to enable them to provide an 8 week program to alleviate cancer related brain fog. This class was developed, piloted, and evaluated by Dr. Heather Palmer of Maximum Capacity in Toronto, Canada. This will be the first such program in the US and will be available at at least 4 sites in our state. The training will be subject to a standard CEU program evaluation and trainees must pass proficiency testing with Dr. Palmer. This will result in NE being one of the first states to have a tested program to help cancer survivors recover from “chemobrain.”
Contact: Stephanie Koraleski – firstname.lastname@example.org
Community Action Partnership of Mid-Nebraska
Community Action Partnership of Mid- NE (Mid) will work with low income minority women in Dawson County to reduce health disparities and link them with resources to provide clinical breast exams, mammography, and other breast cancer related screening and treatment. The program will be evaluated by through monthly data tracking sheets, follow-up telephone surveys, and customer satisfaction surveys
With experience providing EWM outreach, recall and intervention from 1998 through June 2013 and previous Susan G Komen breast screening and education grants, low income minority women are comfortable seeking breast health care information through Mid’s bilingual outreach worker. Our agency goal with this pilot project is to provide consistent language appropriate, culturally sensitive education and outreach services for minority women. We hope to raise community awareness of resources offering breast clinical exams, mammography and more extensive breast cancer screenings and treatments. Mid will work with women one-on -one to remove language, culture, transportation and other barriers that keep women from receiving their breast health screenings. We will utilize the stages of change model to help women one-to -one to move towards healthy lifestyles and regular breast health screening.
Contact: Julie Weir –JWeir@mnca.net
This is an annual live event in June that is designed to provide information from the National ASCO meeting for oncologists, primary care physicians, oncology nurses and other allied health practitioners that were unable to attend the national meeting. It is designed to cover disease specific topics that are of greatest interest to the practitioners in this region. Participants are encouraged to ask questions so that they gain the greatest benefit from the information presented. The goal is to improve outcomes for patients with cancer in our region. All the speakers are renowned oncologists from the leading cancer centers in the country. They have proved expertise in the area they are presenting on. All details of program planning are overseen by accredited providers of CME and other healthcare continuing education credit. An evaluation tool is distributed to every participant as they check in and are collected at the end of the program. The results are tabulated and the summary is distributed to the members of the planning committee who reviews the results and then takes any action needed to improve and ensure the ongoing quality of the program.
Contact: Jim Heft – email@example.com
My Sister’s Keeper – Celebration of Life event
This grant will support the upcoming Celebration of LIfe event. The Celebration of Life is an annual educational Conference for African American Women in Omaha Nebraska who have survived or are living with breast cancer. Each year professional speakers are presented to provide up-to-date information re: different aspects of the breast cancer journey.
The purpose of the Celebration of Life is to provide culturally- sensitive breast cancer education to African American women and their families as well as other community women. The speakers for this year are Drs. Jason Foster and Frederick Durden who will speak about the importance of screening, early detection and red flags for recurrence as well as new cosmetic surgery techniques for breast reconstruction. They will also answer questions as indicated.
A part of the program is a very moving candle lighting ceremony for all breast cancer survivors to celebrate their survival, healing and hope.
This event is free for survivors, and will be held October 27th at 2:00pm.
Contact: Jackie Hill – firstname.lastname@example.org
My Sister’s Keeper – Matriarch project
The purpose of this project is to increase awareness of breast cancer in the African American community to include the major factors associated with breast cancer screening, early detection and healthy lifestyle. Five women from My Sister’s Keeper will be trained as Breast Health Educators (BHE) by Jackie Hill APRN to provide information relating to breast cancer risk factors breast cancer awareness and the steps for early detection. Information will also include healthy eating and exercise and their role in prevention. Validated educational materials from Susan G. Komen and American Cancer Society will be used as well breast models. Each of these five women will contact 4 women each these 4 women will each arrange a meeting with all female members of each of their families (5-10) 19 y/o and up, so they can learn the steps to early detection and prevention of breast cancer. The interaction between family members can provide support and encouragement toward adhering to early detection techniques and lifestyle changes. Each family group will take a pretest before the information is presented and a post- test after to assess their grasp of the presentations.
At the end of one year a follow up session will be held with all participants where an update will be obtained re: adherence to their Health contracts. The goal of the Matriarch Project is to increase the number of women obtaining mammograms, clinical breast exams each year.
Contact: Jackie Hill – email@example.com
OneWorld Community Health Centers, Inc.
The purpose of the BiNational Health Week Breast Cancer Night is to promote breast cancer awareness among Latino women in Omaha. The program will provide culturally appropriate information on breast cancer prevention and early detection including: education sessions, addressing healthy eating and physical activity; self-breast exam instruction; and free clinical breast exams. The event will be held during BiNational Health Week 2013. This event has evolved into a multi-national health campaign held over two weeks in October.
OneWorld will evaluate the program based on the following objectives, 1) reach 150 women with culturally appropriate information to increase awareness about the importance of breast cancer prevention, early detection, and provide free clinical breast exams; 2) provide BMI screening for participants; 3) assess current healthy lifestyle practices (diet and physical activity); 4) provide education sessions that focus on healthy eating and how to incorporate physical activity into daily living
Refer those with a BMI of 30 or higher to healthy lifestyles program at HyVee, YMCA, or other community program; and 5) conduct one month, three months, and six months follow-up phone calls for those women that were referred to the healthy lifestyle program.
Contact: Megan Gehrke – firstname.lastname@example.org
YMCA of Adams County
For the past two years, the YWCA has teamed up with multiple organizations offering education and awareness about the importance of breast health. The YWCA provided information and education to low-income, uninsured and under-insured women. We reached 382 women with 28% being minority. This year the YWCA would like to offer educational speaker and informational materials to women attending our two colleges; Hastings College and Central Community College. Our theme for the educational campaign on the campuses will be called BREAST (Be Really Educated About Statistics Today). The YWCA will network with Mary Lanning Healthcare to provide an informational speaker. We will conduct pre and post tests at the BREAST luncheons. Our goal will be to provide breast cancer education and health options to college students through speakers, informational materials, and collaboration with local health care facilities. (75% of young women will change her perception about yearly and self-exams). Our objective is to expand our current efforts and solicit new partners in the community especially young women attending Hastings Community College and Central Community College to make breast health a priority.
Contact: Jennifer Lewis – email@example.com
Legal Aid of Nebraska
LAN’s statewide Breast Cancer Legal Hotline will provide access to free civil legal services, ranging from legal advice to representation in court, to breast cancer patients and survivors. LAN recognizes there is a severe lack of options for underserved individuals to obtain legal assistance in Nebraska. LAN is prepared to remove the legal obstacles that are preventing breast cancer patients from receiving effective medical care. Staff attorneys have experience and expertise in the specific areas of law that patients typically need assistance with: consumer law, family law, public benefits, employment discrimination/termination and end of life issues.
This project will effectively meet the legal needs of breast cancer patients across the entire state of Nebraska through over-the-phone advice and direct representation in court. Essentially, the hotline will be an expansion of the current successful Medical-Legal Partnership. Hotline services will allow women to clear hurdles to legal stability without incurring the debts of lawyers’ fees. Success of this life-changing initiative will be measured by the legal outcomes, identifiable correlation between improved health and improved legal situation and overall improved quality of life. LAN will track outcomes via client satisfaction questionnaires and post legal assistance follow-up.
Contact: Dave Pantos – firstname.lastname@example.org
Salem Children’s Center
The purpose of this program is to educate African American women in underserved communities about the importance of breast health and the risks that come with being African American and diagnosed with breast cancer. The program will host two culturally sensitive community forums. One forum will educate African American women on the severity of breast cancer in the African American community and what can be done to help this pandemic. The second forum will be a community fair that will teach women how to self examine and also give free clinical breast examinations. We will evaluate our forums by doing pre and post assessments regarding the knowledge they have pertaining to breast health before and after the forums. We will also give overall program evaluations to those who attended both forums. The biggest expectation that our program has regarding the community is knowledge. The goal is to educate as many as possible and use the participants as advocates to spread the word about the importance of breast health in the African American community. We understand that this issue is something that cannot be changed over night, but with the strong support system and advocacy, many great things can be accomplished.
Contact: Thelma Sims –TSims@salembc.org
CMSA – Nebraska Chapter
CMSA has scheduled an October “Lunch N Learn” at The Nebraska Medical Center on October 10th, 2013 titled “Contemporary Myths about Breast Cancer” presented by Dr. Edibaldo Silva, Associate Professor Division of Surgical Oncology at The Nebraska Medical Center. We have purposely scheduled the event in October to coincide with Breast Cancer Awareness month. CMSA would like to spotlight the Susan G. Komen Foundation as a resource for healthcare professionals seeking educational materials/resources for the case managed population diagnosed with breast cancer as well as personal resources.
Contact: Annette Brandl – email@example.com
Ted E. Bear Hollow
Many breast cancer patients who die leave children and grandchildren behind who deeply grieve their loss. For those who realize that they are losing their battle with cancer, there is the added worry about the children they leave behind. Unfortunately, without the appropriate support, many grieving family members will suffer long-term problems with illnesses or maladaptive behaviors. (Huss & Richie, 1999)
This is a worry that Ted E. Bear Hollow (TEBH) works to alleviate. TEBH is a safe place for children, teens, and their families; it’s a community where they find hope and healing through peer support groups and camps for grieving families with children, ages 3 through 18. The purpose of this project is to increase the awareness of TEBH services among professionals who work with breast cancer patients so that they may assure those who face death that their children will be well supported through the grief process. Families who are facing death will, upon request, receive a booklet titled, “Hearts of Hope: Inspiration for Children in Times of Illness or Injury.” This is appropriate for adult caregivers who are experiencing anticipatory grief and includes information about TEBH. Finally, money will be designated to sponsor families through free support groups and camps.
Pre and post-group/camp surveys are conducted for evaluation methods. Post-group surveys reveal 95% of the adult caregivers see a marked improvement in their children’s outlook and behavior.
Contact: Rebecca Turner –firstname.lastname@example.org
YMCA of Greater Omaha
LIVESTRONG at the YMCA is a research-based physical activity and well-being program designed to help adult cancer survivors reclaim their total health. Participants work with Y staff trained in supportive cancer care to safely achieve their goals such as building muscle tone and strength; increasing flexibility and endurance; and improving confidence and self-esteem. By focusing on the whole person, LIVESTRONG at the YMCA is helping people move beyond cancer care in spirit, mind, and body.
This project will enable breast cancer survivors to enroll in the LIVESTRONG program. LIVESTRONG at the YMCA is a FREE 12-week group training program that includes a family Y membership for cancer survivors.
Contact: Angie Frederick – email@example.com